UPDATE on my health: I heard from the doctor and she’s shifted again. She said she changed the CT scan because of my weak kidneys, but that also meant I couldn’t get the MRI because of the contrast involved, so instead she wants me to get a PET scan, which makes no sense since I’d get radiation from that one too! They used to send me home from the hospital after a PET scan with a note for the police in case I got pulled over because they’ve often detected bomb-making material from patients after their PET scan appointments. I went home with many of these “notes.” Despite all this, the MRI and PET folks were still calling me to make an appointment. Here’s what happened: she wanted me to get a CT scan, got mad when I refused, then out of fear I changed my mind and said I’d do it, then I got a message saying I was getting the PET scan and MRI instead. Because I didn’t agree to do any of those and only had agreed to do the CT scan, I said “no” to all of them. Then she called and explained that she changed the scan from a CT and MRI to the PET scan because it would be less harmful to my kidneys. Had I not initially refused to do the CT scan, my poor kidneys would have already been harmed—which was the reason I didn’t want it in the first place! So, now I’m done. I never want to see this doc again. I’m not doing any of the scans, I don’t need them.
The night before last, I prayed again to God, asking him to be my doctor (again), then told him how overwhelmed I was by all the research I've done, and wondered if I was trusting in Him at all? It was then I just asked for a miracle. I'm just too tired to figure it all out. Then the next morning I called my mom and she told me to tell the doctor to "buzz off" and don't do the scans because my blood counts are fine, and just eat right, drink enough water, take my B17 ... and remember that God is my doctor. I was shocked to hear her remind me of what I'd just prayed the night before (especially because she doesn’t usually talk this way). So, with that reminder, I told the doc to cancel all my scan appointments, and that’s when I finally heard back from the doctor (not her nurse, but the actual doctor) who told me the scans would have been bad for my kidneys anyway. Is God in charge or what? I’m just so grateful He led me to make the right decision.
Remember the pregnancy test a man with cancer took for me, and it was positive? Well, even though it’s not extremely accurate, I took one, and I’m not pregnant, which means, I don’t have cancer. I don’t have any visible tumors, no pain, nothing. I’m fine! Other than the fact that I’m losing my hair. During this discovery about my kidneys, I found out that high ferritin (the whole reason I got on this wild trek) can be caused by kidney disease or kidney damage, which then can affect the thyroid, ETC. Like I said (and the reason I was hesitant to get the CT scan in the first place) I’ve gotten A TON of these scans! A TON! So many, I can’t even count how many I’ve had. I’ve got to protect my kidneys—they are a vital organ, after all. And I wouldn’t be surprised if they are now suffering because of all the cancer treatments (radiation, chemo, scan after scan after scan), and I need to do what I can to help them. I don’t have kidney disease or kidney failure, or kidney cancer or colon cancer. I don’t have ANY of the symptoms for those issues. God helped me to see what my kidneys needed before any of that happened. Allowing me to lose my hair was a wake-up call! Not to mention, taught me not to complain about my hair no matter what it looked like. Instead, I’m grateful for whatever I’ve got left! And I thank God for that. Because of all my complaining, I really don’t deserve to get it back. I lost it once, God brought it back beautifully, and then I complained. Such a brat, I am!
So, my goal now is to do everything I can to help my kidneys. Lord willing, this will lower my ferritin, and then my thyroid will get back on track, and my hair will come back. All of this will happen if it’s God’s will. He’s my Physician.
On November 1, 2010, I was diagnosed with Stage Four Non-Hodgkins T-cell Lymphoma when my oncologist found a tumor in my head. He gave me radiation for this tumor, which continued to light up on all the PET scans for the rest of my treatments, but the growth had stopped. Within a year-and-a-half I was given eight rounds of chemo (including 22-hour bags and other numerous amounts of smaller injections of chemo that are innumerable—nearly bleeding to death twice), 35 treatments of radiation, a stem-cell transplant (which included "enough chemo to kill a healthy person"—my oncologist liked to say—along with full-body radiation), and numerous amounts of drugs and one magnesium vitamin.