A lot of folks are asking what I’m doing as far as treatments since the docs found four more tumors (three in my lymph-nodes and one on my rib). My oncologist wanted me to get another biopsy, which included collapsing one of my lungs and entering between delicate blood vessels that could potentially cause great harm, and I could get pneumonia after the surgery, etc. This, of course, is routine to them, but not to me. I believe they would do a good job if I decided to go through with this procedure, but if I’m not doing chemo, what’s the point? See, they want me to have this done to make sure the cancer is what they think it is, because if it’s not T-cell Lymphoma, they would want to treat it with another kind of chemo.
Some are shuddering at the thought that I’m no longer willing to do anymore chemo. I’m sorry if I’ve disappointed you, but please know that I’m still FIGHTING. I may or may not succeed, but I may or may not succeed with chemo, either. You see, the kind of chemo I’ve been on are TWENTY-TWO hour bags, and numerous other “brands” that made it so I’d have to stay in the hospital for five days at a time in and out for eight months straight (with the last “bag” of chemo being enough to “kill a healthy” person; or so my oncologist liked to brag, but that was in prep for the stem cell transplant). I rarely got those IV injections where I went into the infusion center, got my one minute or four hour injections (I know because my stepdad went through this, and btw, he died last April of 2012), and drove myself home. No. The kind of chemo I got nearly made me bleed to death TWICE, I landed in the ER about five times, and there was no way on this green planet I was able to drive myself home after getting my chemo “fix.” In fact, I spent a good year, sitting and lying down on our living-room couch, while I had to watch someone else take care of my four children with no ability to take part in their lives, other than as a spectator. So, no. I’m DONE with chemo.
Again, I’m still FIGHTING. Here’s how.
I’m doing everything I can to UP my immune system. There’s ONE thing ALL my doctors agree on (which is RARE that they would agree on anything), both my oncologist and naturopathic docs, and that is I need to up my immune system. This is a difficult task because chemo and radiation have destroyed my GI tract in many ways, and if you know anything about the immune system, it needs the GI tract to ripen, grow and function.
You see, the new stem cells are supposed to kill the cancer, but I’ve been on an immune suppressant drug ever since the transplant because my onc (oncologist) doesn’t want the new cells to attack me. Trouble is, he’s been very slow at lowering my tac (Tacrolimus, which is the immune suppressant drug) levels. At one point, I was actually given an overdose of this drug, and it was shortly thereafter that three tumors arrived on the scene (this was AFTER the transplant), which my onc said was his worst nightmare. So, continuing with the tac, I got radiation on those three tumors, from which I got extremely sick and lost 70 pounds (of course, I was “dying” to get down to this size, but I wouldn’t recommend the radiation and chemo diet).
It was around that time, shortly after radiation, that I went to see my naturopathic doc in AZ. He put me on a “million” supplements (okay, it felt like a million; I had about twenty bottles of supplements prescribed by him). And visiting him cost us approximately 1200 to 1700 dollars a day (yes, PER DAY—and that was with HUGE discounts), plus another 9800 dollars for one particular IV. It was after one of those two-week treatments on top of the supplements that I was declared in remission at the end of December in 2011.
After that wonderful declaration, I simply got sick and tired of taking so many pills. I’d called my AZ doc and asked if I could lower my “dose” down to a few “most important” bottles, but he said I had to take them ALL. It was so exhausting shoveling down so many pills a day, that I finally quit taking them all, mainly because I didn’t know which ones were most important. From hearing my hubby talk, I suspected that B17 was pretty important, but I’d also heard talk of it being dangerous (that it killed some folks), so I was actually scared to take it. So . . . there the B17 sat, among all the other “trillions” of pills.
Despite my being in remission, I went back to AZ to get one more big treatment so I could make sure the cancer would stay gone. But it always bothered me that during all these treatments, I was on the tac (the immune suppressant drug). So when I got back, I asked my onc if we could lower my dose, and he FINALLY did (I’d been asking for a while by this time). But he wanted to see me back ASAP to make sure I didn’t show any signs of graft vs. host disease (this is where the new stem cells would attack me; and despite upping my immune system so much in AZ, the stem cells never attacked me). After going in right away, there were no signs of graft vs. host, and in fact, my liver counts improved, so my onc kept me on that dose of the tac. During that time, I had a PET scan that revealed one small tumor on my pelvis.
Devastated by the blow, especially after I’d just gotten treated in AZ, I followed my onc’s advice, and did radiation, yet again (keep in mind, I haven’t taken any supplements since the beginning of the year). However, I set out the B17 and stared at it as it sat on my shelf (B17 is also called Laetrile = apricot seeds--which MUST be the correct variety, click this link for details). I wanted to take it because I’d heard good things, but I thought I had to take it with something in order for it to be safe. Afraid I might be risking my life by taking it the wrong way, I left it sitting on my shelf. It was also at this time my onc said I needed to up my immune system, and he lowered the tac again, but very little. A week after this lower dose, with no signs of side-effects, and my onc showing little concern that I needed to get in quickly for a check-up, I lowered the dose again on my own without telling my onc, and after finding out I’d lowered it, he lowered it again, but very little. Too little IMO.
After the test results for the radiation were done, the PET scan revealed a successful radiation treatment on my pelvis (although it still lit up), but FOUR MORE TUMORS were found in my body. Three in my lymph-nodes, and one on my rib. So . . . that’s where I find myself today. That’s when I took myself completely off the tac against my onc’s advice and to his horror, and I’ve been off it for over a month now, and I’m FINE. I’m hoping the new stem cells will finally KILL the cancer, which was the goal in the first place. I figured I didn’t have much to lose, especially with the cancer coming back in droves.
It was at this time, I called my AZ doc to order more B17 and Zinc (he’d given me orders to take the B17 with Zinc; but I’d been on so many other supplements, I wasn’t sure if I needed the others or not). But when he quoted me a price of 225 dollars for one bottle of B17, I knew I had to find another way. There was no way I could afford those prices. So . . . I Googled it. I found the SAME EXACT BOTTLE that I’d purchased from the AZ doc for 80 bucks on Amazon (it’s no longer available on Amazon, btw)! I ordered two bottles and still paid less than I would have for one. I realize my doc in AZ has got to make a living, but I’ve trained to run my own business, and even assuming he has to purchase this at retail cost like me, his price for this stuff is still over the top.
During all this, I’d made contact with a naturopathic doc here in Colorado and he’s helping me up my immune system. His supplements aren’t nearly as expensive as in AZ. And I only have to pay 40 bucks to see him, versus 100 dollars for the same kind of visit in AZ.
Because of the incredible costs in AZ for treatments, and since despite getting a treatment when I was in remission the cancer still came back, I decided I really don’t want to go back to AZ for more treatments. What I am doing, however, is juicing like a madwoman and taking 1000ml of B17 with Zinc citrate, Vit. C, and magnesium, which is what my naturopath doc here said was usually taken with it (though he said he wasn’t an “expert” on the stuff; mind you, B17 is illegal to be prescribed by doc's in Colorado, so he can't suggest I take it). He said the B17 simply won’t work without Zinc. So . . . it wasn’t that it was dangerous if I didn’t take it with something else, it was that it simply wouldn’t work or be effective! I started back on it a week ago. But when I got on it, I had to find out how dangerous this was, and how long I should take it, etc. So, I did some more Googling . . . .
In short, here’s what I learned from the book “World Without Cancer” by G. Edward Griffin; following are a few quotes from experts on pages 102-103 (emphases are all mine):
Commenting on the question of possible toxicity of Laetrile, Dr. Burk has summed it up with this emphatic statement:
“With FORTY-FIVE YEARS (oh, and remember this was written back in the SEVENTIES) of STUDY and RESEARCH on the cancer problem, the last thirty-three years in the U.S. National Cancer Institute, and with files of virtually all published literature on the use of amygdalin (“Laetrile”) with reference to cancer, and with innumerable files of unpublished documents and letters, I have found no statements of demonstrated pharmacological harmfulness of amygdalin to human beings at any dosages recommended or employed by medical doctors in the United States and abroad.”
Dr. D.M. Greenberg, Professor Emeritus of Bio-Chemistry at the University of California at Berkeley, and consultant to the Cancer Advisory Council of the California Department of Public Health added this note of concurrence:
“There is no question that pure amygdalin (Laetrile) is a non-toxic compound. This is not questioned by anyone who has studied the reports submitted to the Cancer Advisory Council of the State of California. “
“Each year in the United States, over ninety people die from aspirin poisoning. NO ONE EVER HAS DIED FROM B17.”
“In another series of tests, white rats were fed SEVENTY TIMES the normal human dose of Laetrile, and the only side-effects produced were greater appetite, weight gain, and superior health; just what one would expect from taking a vitamin.”
What’s the big deal about B17? It KILLS CANCER. Read all about it in “World Without Cancer” by G. Edward Griffin. B17 doesn’t kill good, normally functioning cells, like chemo does, but it kills CANCER CELLS. Why don’t the doctor’s give cancer patients this? I’ll let you figure that one out.
All I know is while I was on B17 (which in its simplest form is APRICOT SEEDS, something God invented and gave to us for our GOOD), I was in REMISSION. I just hope and pray that it’s not too late for me, and that I didn’t discover this too late.
Another thing I’ve learned. If I want to be well, I’ve got to take charge of my own body and decide what I want for treatments. I know my body better than anyone else on the planet.
Lastly, I'd like so share a comment made to a one star reviewer of the book "World Without Cancer." This father loved his baby daughter so much that when he found the TRUTH about how to fight cancer, he saved his daughter's life.
In 1978 my youngest daughter was born with a Stage 5 cancerous tumor ("Fibrous Sarcoma") on her lower back close to her spinal cord. The Doctors told us there was little hope for her survival. As the tumor had already begun to attach itself to her spine and once it entered into her spinal fluid it would spread throughout her body. The only thing they said they could do was to perform an emergency operation on her to remove the tumor. However they said that chances were 80% or better that the tumor would return. And if it did return she had absolutely no chance of survival.
So at just 1 1/2 months old she underwent a 4 hour surgery to remove the tumor. In the meantime I went to the public library and started reading anything I could find about alternative treatments for cancer. That is when I came across "World Without Cancer" by G. Edward Griffin at the Atlanta Public Library. As soon as my daughter returned home after her surgery, my wife and I followed the books instructions and began feeding her ground up Apricot kernels in her baby cereal every morning. We continued to do so until she was 3 years old. The cancer never returned and she is now a healthy 29 year old mother of 3.
Later, the Doctors told us that they were actually 100% sure that her cancer would return. Because Fibrous Sarcoma was such a virulent form of cancer that if they missed even a single microscopic cell it would re-propagate and kill her. But they didn't want to tell us that, because they wanted us to have some hope. Her Doctors also scoffed at us for feeding our infant daughter the Apricot kernels. 3 years later when she was still cancer free they were no longer scoffing at us.
Here's where to find the book "World Without Cancer" by G. Edward Griffin. And here's where you can find B17. Because I'm full of cancer, I'm taking 1000ml a day with Zinc citrate. I plan to do this for three years. After that, I'll lower my dose to 100 or 200 ml a day with Zinc citrate. Here's where you can find B17 in 500mg doses.
I've also learned "all" the important vitamins to take with B17 for it to work well. Here's a list:
Zinc, Vit C, Manganese, Magnesium, Selenium, B6, B9 and B12, Vit A, and Vit E (at least 2000 I.U.) Here's the LINK where I learned this. I suggest you read the entire page if you're fighting cancer.
They also say it's critical to take pancreatic or proteolytic enzymes (caution: these are blood-thinners). Anyway, I have no idea what pancreatic or proteolytic enzymes are, but what I do know is that they digest protein. Am I taking these? I don't know. I am on a regime of supplements that support my digestive system in order to boost my immune function. So . . . who knows. I'll figure it out. ...Coming back to this later. I found the enzymes at Vitamin Cottage (they're not cheap), and I'm taking them. :-)
ALSO, and this is important for those on blood-thinners and/or who have low blood-pressure (I have low blood pressure, and I've noticed this). B17 WILL lower your blood-pressure. I tried taking 1500ml of B17, but it was too much, so I dropped back down to the 1000ml dose per day. It's possible I have low blood-pressure at the moment because I still have a tri-fusion picc line that requires heparin to avoid clots in the line. This thins the blood. So . . . there ya have it. :-)
SEPTEMBER 6, 2012
I'M THE ONE IN CHARGE --- WHO KNEW?
I just learned a valuable lesson that everyone has been telling me, but I never "believed them" or truly understood until now. And that is, I'm the boss, I'm in charge when it comes to my cancer treatments.
I went to see my oncologist last week, expecting to receive a death sentence. As you all know, I’m refusing to do more chemo. Which to most of us means “death sentence.” You’ve only got a few months, weeks, days to live, etc. So, I went there expecting that, thinking they’d give me a few months anyway. I felt strong though, so I didn’t need my husband by my side, and I simply brought a friend. Poor thing. I’m sure she was wondering if she’d need to offer a shoulder for me to cry on, or considering how “passionate” I can get at times, possibly a sounding board that gets pounded on. Who knows? All I know is my precious friend and sister in Christ (all her jitters completely contained) accompanied me that day, not knowing what to expect. Talk about someone I can depend on. It’s so easy to love those kinds of people, isn’t it?
Anyway, I went, and I was armed. You see, I made several copies about B17 from two pages of the book WORLD WITHOUT CANCER along with a note from me to other cancer patients, explaining to them what B17 did for me and could also do for them. I found that patients were very open to receiving this information. On the page, I pasted (literally pasted) a copy of the link to the VIDEO DOCUMENTARY I’ve been harping on everyone to watch as well. I told the secretary at the hospital that I was passing out information about B17, and she was saying that they were all going to lose their jobs, and don’t tell the nurses because they surely won’t like it. I figured, what’s a lost job compared to a saved life? I know I was risking getting kicked out of the hospital, but I didn’t care. I was desperate to tell those that needed it most!
Back to my onc (oncologist). The NP (nurse practitioner, who I see before my onc) asked what I wanted to do from here on out, since they found more tumors, etc. I told her I wasn’t going to do the biopsy because I wasn’t going to do chemo, so there was no point in doing the biopsy. My onc later asked, “Don’t you want to know what it is?” I said, “I don’t care what it is.” I could tell he was simply curious (you know, it’s that scientific mind at work), but what he seems to forget is the fact that I have four children here at home NEEDING their mother. Why make it so they have to take care of me when it’s not necessary?
In answer to the NPs question, I handed her a copy of the paper I’d been passing out to all the cancer patients and said I was “doing B17.” She said (the onc was not yet present) that it was good, that it’d be good to do some natural treatments along with what they do. I said, “Really?!” completely dumfounded because I was so used to being made fun of for looking outside the box.
My biggest question, however, was how my liver counts were doing because I’d been off their tac (the immune suppressant drug) for over a month and a half. See . . . the “graft vs. host disease” (GVHD--when the new stem cells attack me) all started with my liver. Shortly after the stem cell transplant last year (over a YEAR AGO, can you believe it?) my liver counts went up (we’d asked my onc and nurses if my liver was acting up because of all the meds, and they said it was very possible, but they couldn’t take any chances) and because my onc feared it was the GVHD, he treated my symptoms as such (and in came the prednisone, overdose of the tac, etc). The tac is what kept GVHD under control. So my biggest concern going there was to find out how my liver counts were doing because I’d been off the tac for so long. If I got GVHD, then my case was hopeless, and a death sentence might have been in order. But when I asked, the NP said, “Great! They’re doing really good!” Really? Really! WHOOO, HOOO! That meant, the new stem cells were NOT attacking me! YAY!
BTW, when she asked what meds I was still on, I told her I was on NOTHING. I got off the tac on my own (to my onc’s horror) and ALL the antibiotics two weeks before I came in (my naturopath doc here ran some tests and told me my immune system was working a lot better, so I got off those as well).
Anyway, when my onc arrived on the scene, I found out he was leaving and would no longer be my onc. I had to thank him and hug him, because in all honesty, I wouldn’t be here today had it not been for him. It took going through all this to discover what we now know about cancer treatments, and because I didn’t know it in the beginning, I wouldn’t have lasted this long. Anyway, he was leaving to work in Chicago to develop a new drug for cancer. So, naturally I asked, “Have you ever heard of B17?” Immediately, he puffed up his chest and chuckled proudly, “Of course! Of course, I have!” all smiles. And that’s all he said. You see, normally if my onc thought something was quackery, he would come right out and say it. The weird and interesting thing about this was, he didn’t say anything more at all. Also, had he said something positive about it, he could lose his job. So, there he stood in silence, and there I waited in silence. Don’t remember what broke the silence, but it was probably him jumping to another subject. Another interesting thing to note is that when I mentioned that I was “doing B17,” the NP was in complete support of “alternative treatments.” But when my hubby (who was on the phone, btw) asked about some “proton” treatment in OK, she sounded all the warning bells about not spending our money and going bankrupt, etc, to some unknown doc doing some strange treatment. Hmm. All warnings and signals flared with that, but NOT when I said I was taking B17. But don’t we all know that B17 is illegal to prescribe here in the “land of the free” because it’s “so dangerous?” Crazy how we have to play this stupid game all because the government has illegalized a TRUE CANCER KILLER! Hmm. I wonder if we could sue the government for taking so many lives? Interesting thought. I’ll come back to that in another post (maybe).
I finally asked my onc the most important question. “Since I’ve been off the tac for over a month, do you think the new stem cells will finally kill this cancer?” His immediate answer was, “Yes. Yes, I do.”
So, I walked away with a little more hope. I say “a little more” because in all honesty, I already had hope before I walked in that door. I just didn’t know how much I was going to have to defend my own “treatments” with B17, and what kind of battleground I’d entered. Turns out, they are happy to monitor me and see how I do while on this wonderful, God-made supplement called B17.
All I can say now is Thank You God. Thank You for Your wonderful gift of apricot seeds. xxx
October 11, 2012
SHOUTING FROM THE ROOFTOPS
It’s the moment we’ve all been waiting for, and had I been more patient, if I’d gone in when the PET scan was originally scheduled, I would have been labeled “in remission.” In about four weeks, I’ll be in complete remission. I have no doubt about that.
Technically, I had five tumors, even though only four new ones had arrived on the scene. One had been radiated, but in the last PET scan this summer it still showed a lot of residue, which usually lasts for several months. That happened with my other tumors. That was the tumor in my pelvis. Well, in this PET scan result, it was completely GONE. No residue what-so-ever! I was shocked!
On top of that, the tumor in my right rib is GONE. There’s no sign that it was ever there!
And finally, out of the three tumors in my lymph nodes, one completely DISAPPEARED! There are no signs it was ever there. As for the two left in the lymphnodes: one is almost completely GONE (the test results read: “There is almost complete resolution of abnormal . . . [cells]”). And the other has shrunk so significantly that the doc isn’t worried a bit about it!
When he walked into the office, he said, “Your PET scan looks great!” And he went on to explain what I shared above. He then sat down and said, “Whatever you’re doing, keep doing it. It's working." He leaned forward, elbows on his knees. "What are you doing?”
I handed him my paper listing: B17, B15, Zinc Citrate, and Pancreatic Enzymes.
He said, “Since you’re not on any treatment plan from us, I don’t see any reason for you to keep seeing us. And what you’re doing seems to be working better than anything we have to offer. You should continue with your current treatments and go live your life.” He said this “live your life” statement at least three times. It was after this he showed us the PET scan photos, and when done, shrugged and said, “I don’t even see anything that I would note as a problem. There’s nothing new and what is there has diminished. You should get off this aggressive scanning schedule and live your life.”
I asked about my blood work, and he said it looks very good, and he added with a chuckle, “Better than mine.” He also said I didn’t have any signs of Graft vs. Host disease (GVHD), and he even said I never had it. I was surprised by this because my other doc (oh, this is a new oncologist, btw. My original one left to invent a new drug for cancer). Anyway, my other doc believed I indeed had GVHD. Anyway, he said, unless I have symptoms, don’t come in.
He seemed very impressed, and asked if I was seeing another doc who subscribed these treatments. I lifted my book WORLD WITHOUT CANCER and said, "I’m 'seeing' the docs in this book." He wrote down the title, and hopefully, he’ll read it.
In the meantime, I’ve come home, and I’m LIVING my LIFE!
I want to literally shout this news from the rooftops, but I have a cold, and I’m losing my voice!!!! I can’t stand it! I want to tell the world! LOL
Thank YOU God! xxx THANK YOU!!!!
This was the SONG going through my head on the way home.